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PATHFINDER

Category: Awareness

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February 17, 2025 Advocating / Awareness / Carney Complex

Clarification Regarding My Role and the CNC Support Group

It has come to my atten­tion that there may be some con­fu­sion with­in the Car­ney Com­plex Com­mu­ni­ty regard­ing my rela­tion­ship with the Car­ney Com­plex Community

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Rare disease day 2023
February 28, 2023 Advocating / Awareness / Carney Complex / Mental Health / Rare Disease Day

The Adult in the Room

Guest Post by Var­sha Vijayakumar
Var­sha delves into the impact of a diag­nos­tic path­way on patients and their care­tak­ers, and ques­tions the cur­rent focus on men­tal health and assis­tance offered…

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  • Clarification Regarding My Role and the CNC Support Group
  • The Adult in the Room
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