Skip to content

PATHFINDER

It's part of me ; I choose joy

  • Facebook
  • LinkedIn
  • Home
  • About me
    • This Blog
    • The Name
  • Shareables
PATHFINDER

Welcome to my corner of resilience and innovation.

Embark with me on a journey through the swamp of rare diseases and healthcare challenges, where acceptance meets resilience and innovation thrives. From navigating medical complexities to embracing self-acceptance, come along as I share my experiences, insights, and discoveries. Together, we're forging new paths and shaping a future where every voice is heard. ______________________________________________________

March 7, 2021 Advocating / English/German // Englisch/Deutsch

‘Student Voice Prize’ Wettbewerb

Gast-Beitrag (EN/DE)

Ich hat­te das Vergnü­gen, mit „J“ zu sprechen, ein­er Frau mit­tleren Alters, bei der eine unglaublich sel­tene Krankheit namens Car­ney Com­plex (CC) diag­nos­tiziert wurde.

Continue reading
February 28, 2021 Advocating / English/German // Englisch/Deutsch

Student Voice Prize Competiton

Guest Post (EN/DE)

I had the plea­sure to speak to “J” who is a mid­dle-aged female diag­nosed with an incred­i­bly rare genet­ic dis­or­der called Car­ney Com­plex (CC).

Continue reading

Posts navigation

«Previous Posts 1 2

Recent Posts

  • Clarification Regarding My Role and the CNC Support Group
  • The Adult in the Room
  • Rare but still deserving of care
  • Beyond the cookie cutter
  • Visit from Outside

Categories

  • Advocating
  • Awareness
  • Carney Complex
  • Coping
  • Depression
  • English/German // Englisch/Deutsch
  • Identity
  • In Retrospect
  • itspartofme
  • Medical Screenings
  • Mental Health
  • Rare Disease Day

Archives

WordPress Theme: Maxwell by ThemeZee.
error

Enjoy this blog? Please help me spread the word on Carney Complex :)

  • Follow by Email
  • Facebook
    Facebook
    fb-share-icon
  • LinkedIn
    LinkedIn
    Share